vital functions
Jun. 22nd, 2025 07:22 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
... is a placeholder because I am doing so badly at routines in general and bedtime routines in particular, still, augh.
... is a placeholder because I am doing so badly at routines in general and bedtime routines in particular, still, augh.
I went "HOLD ON I HAVEN'T POSTED--" at 00:01 last night, when I had already been in bed but failing to sleep for about twenty minutes, and so I will tell you that part of the reason that I did not manage to actually post, actually yesterday, is that my reward for having finally e-mailed the headache clinic and said "so yeah I took my loading doses in mid-April, sorry I didn't manage to e-mail at the time, executive dysfunction has been eating my entire brain"...
... was of course a response like "well ideally your follow-up appointment would have been last week but, okay, fine, how about Monday? :|"
"... oh and by the way you know those questionnaires we want you to submit a minimum of a week in advance? yeah if you could get those done too--"
-- which: ENTIRE brain.
(I managed to confirm the Monday appointment. I did not manage to get the headache diary and questionnaires done.)
I have managed all of my physio once and only once this week. I have not yet got on the mat at all. I have been spending a lot of time asleep, which probably shouldn't surprise me, and a fair amount migrainey, which does (unpleasantly). Have this evening at least managed to send the email to the headache clinic that's been due since April, and consequently may or may not actually get an appointment in time to get a prescription in time to not need to reload the f2f galcanezumab again.
(Have also been really struggling with actually opening notebook since the last trip up north, which is helping precisely nothing. Maybe acknowledging that here will make it a little less scary to go back to, at least.)
The watch tells me I achieved +102 "body battery" points, which I am amused to see.
But I have also visited the allotment (on my way back from physio) and have eaten: raspberries, a strawberry, a cherry, redcurrants, jostaberries, peas, broad beans, kohlrabi. V pleased.
Item the first: I have no idea what the hell made the ominous donk-slither-donk noise in the portaloo at about midnight last night, but the phone I'd convinced myself it was was in a neat little pile with my laptop, in the tent, in the morning -- after I'd spent some time being sad about inadequate backups of photos of tiny sleepy rhinos -- which was an enormous relief (though I am also very pleased with myself for how well I handled things). (Especially given that my conviction that this was what had happened was in part based on being as aware as I could be of how abruptly my cognitive function had deteriorated with Surprise Unscheduled Migraine Onset.) (Still haven't worked out what on earth the donk-slither-donk was, but it's none of the obvious Truly Upsetting things to have lost, so I'm Currently Fine With This.)
Item the second: it is hot. This field contains lots of chamomile, and also lots of people. I am really enjoying the way it smells.
Item the third: I am really enjoying the dark chocolate + salt + nuts snack bars that crew welfare is providing, which I'd not previously noticed.
Item four: THE HALBARD THAT IS A SHARK.
I am already very very tired.
But.
In a magnificent example of Prosocial Mammals: yesterday, when we were like 3/4 of the way to site, I realised that I no longer had "migraine stabs" on my packing list because I had carefully arranged things so that stabs would be due on a Tuesday so I would never need to faff with stabs in a field again.
... which I completely forgot. Until. 3/4.
... so I put out a Wail addressed to Londoners who would be Heading To The Field, and one of them ACTUALLY WENT on the terrible multi-borough fetch quest to get me my stabs so I HAVE BEEN STABBED and was only one day late, not a week! which is probably going to make the next month much more pleasant! and I just. continue delighted about this.
There you go that's your anecdote of the day.
Okay. So.
Admin: the LRP has a variety of in-game resources. One of the more valuable ones is mithril, which gets used for all sorts of things, like armour and weaponry and building works, particularly military ones.
This event we are seeing the launch of The Cow Stock Market. This inevitably was a topic of discussion over this evening's pizza: discussion of the designs of the I Promise To Pay The Bearer On Demand One (1) Cow slips! speculation over Cow Futures! debate over the impact on the gold mithril standard!
It'll be fiiiiiiiiiine, says A. It'll all be TOTALLY fine. You can absolutely build fortifications out of cows!
-- and at this point, for those of you who are abruptly cackling, I need to point out that A has not read Nona the Ninth.
I also need to point out that I am in a specific groupchat, specifically set up following the event where someone managed to get their hands on some copies of Nona a few days before official release and there was consequently significant in-field bartering for who got to be next in the queue to inhale them, that is named after. well. the cows. did you know that cows have best friends.
But A had no idea why I was abruptly losing it, and I decided that rather than attempt to explain I was in fact first of all going to Depart Our Table, find my Nona dealers, and relate unto them the story of The Thing A, All Unawares, Just Said.
The reaction was extremely gratifying.
Two things:
I keep (especially post-surgery, cotemporal with relearning how to walk) finding more small ways that how I've been doing my various physio exercises isn't quite right. This is a good thing! Isn't it fascinating to be learning more about embodiment and how my body works and how I can best deploy my various muscles!
Up until the hypermobility clinic, all the physio I was ever prescribed made me worse, not better.
It abruptly dawned on me, all at once, that the subtlety of the changes I'm making with adjusting how I'm shifting my weight around and so on and so forth? Are almost certainly not actually externally visible. Like, yes, people not understanding hypermobility and problems with it was also Definitely A Problem, but -- the part where I'm still, mm, not necessarily fixing things but certainly developing them, finding places where even with What The Hypermobility Clinic Told Me To Do I wasn't getting quite right... well, the hypermobility specialists clearly went "eh, good enough", and in terms of the effects on my ability to Things I think they were clearly demonstrably provable correct, but -- yeah, okay, sudden understanding of some of just how difficult it would have been to correct some of this stuff.
(I'm very sure that all my various epiphanies will turn out to be about things that still aren't quite right, that I can still refine further -- I'm having an extended phase of that with Pilates right now -- but this is a good thing, actually. It's really nice to have such clear evidence that I'm getting to know and understand myself better.)